conference agenda

SaturdaySundayMondayAdvocacy Day

For a downloadable version of the Conference Agenda, please click here.

Saturday, July 10, 2010
4:00 p.m. – 6:00 p.m. Pre-Conference Welcome Reception and Registration (Blue Room Pre-Function)
Exhibiting Hall Marketplace Open (Blue Room Pre-Function)
4:00 p.m. – 5:00 p.m. Newcomers' Gathering (Blue Ballroom)
Come meet other Conference newbies. This is an opportunity to talk with Conference veterans about what the weekend has in store for you.
4:00 p.m. – 8:00p.m. Partner Member Summit and Reception (Hampton Room)
Sponsored by Lilly USA, LLC

For active Ovarian Cancer National Alliance Partner Members only.
5:00 p.m. – 6:00 p.m.

Special Meet and Greet Roundtables (Blue Ballroom)
This year, we will kick off the first night by splitting up into a variety of groups to meet others and share stories about experiences with ovarian cancer. These roundtables include:

  • Young Survivors
  • For Men Only
  • Daughters, Sisters and Mothers of Women with Ovarian Cancer
  • Stage I and II Survivors
  • Late Stage Survivors
6:15 p.m. – 7:30 p.m.

Ovarian Cancer 101 (Palladian Room)
Sponsored by Centocor Ortho Biotech, Inc.
Whether you are new to the ovarian cancer community, or just need a refresher, come hear the basics of ovarian cancer.

Speaker:
Robert Coleman, M.D., Professor and Director of Clinical Research, MD Anderson Cancer Center, Houston, TX
8:00 p.m. – 9:00 p.m. Survivors Teaching Students: Saving Women’s LivesSM
For STS facilitators and participants only.

Speaker:
Linda John, LMSW, LCSW, Program Director, Survivors Teaching Students: Saving Women’s LivesSM, Amawalk, NY
Sunday, July 11, 2010
7:30 a.m. – 9:00 a.m. Conference Registration & Continental Breakfast (Blue Room Pre-Function)
Sponsored by Livestrong
Exhibit Hall Marketplace Open (Blue Room Pre-Function)
9:00 a.m. – 9:30 a.m. Welcome! (Palladian Room)
Official opening ceremony of the 13th Annual Power is Teal Ovarian Cancer National Alliance Conference.

Speaker:
Karen Orloff Kaplan, MSW, MPH, Sc.D., Chief Executive Officer, Ovarian Cancer National Alliance
9:30 a.m. - 10:45 a.m. Plenary I: Research Updates Part I (Palladian Room)
Sponsored by Ovarian Cancer Research Fund
An update in screening and early detection research in ovarian cancer.

Speaker:
Barbara Goff, M.D., Director, Division of Gynecologic Oncology, University of Washington, School of Medicine, Seattle, WA
11:00 a.m. – 12:00 p.m. Plenary II: How Healthcare Reform Affects this Community (Palladian Room)
Speaker will discuss the ways health reform legislation affects ovarian cancer survivors.

Speaker:
Tim Westmoreland, Esq., Visiting Professor, Georgetown University School of Law, Washington, DC
12:00 p.m. – 1:30 p.m. Exhibit Hall Marketplace Open (Blue Room Pre-Function)
12:15 p.m. – 1:15 p.m. Regional Networking Lunch (Blue Ballroom)
Sponsored by Amgen
Meet other individuals from your home state and learn about the different ways to be
involved with your local groups.
1:30 p.m. – 2:45 p.m. Afternoon Breakout Sessions
Sponsored by Nektar Therapeutics

Breakout Session #1: Long-Term Survivorship
(Hampton Room)
Repeated on Monday, July 12 at 8:00 a.m.
New evidence suggests there are benefits to anti-inflammatory/anti-cancer nutritional planning, exercise, and stress reduction for ovarian cancer survivors. Long-term survivor Annette Leal Mattern put the plan into effect and will report on her success with the program with these results: reduced pain and fatigue, improved energy and quality of life, and the possibility of reducing the rate of recurrence (according to the Arizona Cancer Institute). In this session, Annette will share her experience and materials to help you employ these new survival strategies.

Speaker:
Annette Leal Mattern, President Elect, Ovarian Cancer National Alliance

Breakout Session #2: Sexuality (Embassy Room)
Talk with others about sexuality issues that survivors and their partners face due to the side effects of ovarian cancer and discuss ways of overcoming these issues.

Speaker:
Frances Stuckwisch, RN, NP, Ob/Gyn Oncology Nurse Practitioner, Auburn, AL

Breakout Session #3: Complementary Therapies (Governors Room)

Discuss natural therapies such as combining healthy eating, with physical movement/ exercise, while adding a relaxation program for mind-body-spirit.

Speaker:
Ann Fonfa, President, The Annie Appleseed Project, Delray Beach, FL

Breakout Session #4: Survivors Teaching Students: Saving Women’s Livessm
(Capitol Room)
Learn about the Ovarian Cancer National Alliance’s STS program that brings ovarian cancer survivors into the classrooms of medical and health professional students.

Speakers:
Linda John, LMSW, LCSW, Program Director, Survivors Teaching Students: Saving Women’s LivesSM, Amawalk, NY
Diane Rader O’Connor, Board Member, Ovarian Cancer National Alliance

Breakout Session #5: How to Obtain Benefits from Government Programs (Calvert Room)
Learn about how to navigate government programs that might help ovarian cancer patients such as Social Security Disability Benefits.

Speaker:
Diana Varela, Public Affairs Specialist, Social Security Administration, Washington, DC
3:00 p.m. – 3:30 p.m. Remembrance Ceremony (Outside Gardens)
Sponsored by GlaxoSmithKline
A time to honor and remember those who have gone before us.

Host:
Annette Leal Mattern, President Elect, Ovarian Cancer National Alliance
3:30 p.m. – 4:00 p.m. Afternoon Break (Blue Room Pre-Function)
Sponsored by Vermillion, Inc.
4:00 p.m. – 6:30 p.m. Value of Clinical Trials Forum and Reception (Blue Ballroom)
Learn the basics of clinical trials - what they are, why they are important and the key components of clinical trial design. Additionally, attendees have the unique opportunity to visit with representatives of current enrolling clinical trials being conducted in the United States.

Speakers:
Malinda Teel, Ovarian Cancer Survivor, Patient Advocate, Atlanta, GA
George Coukos, M.D., Ph.D., Associate Chief, Gynecologic Oncology,
University of Pennsylvania Health System, Philadelphia, PA
6:30 p.m. – 7:15 p.m. Exhibit Hall Marketplace Open (Blue Room Pre-Function)
7:30 p.m. – 9:00 p.m. I Got Sick Then I Got Better (Palladian Room)
Written and performed by Jenny Allen

I Got Sick Then I Got Better is a comic riff on one woman’s adventures after falling down the medical rabbit hole. Diagnosed with and treated for ovarian cancer in 2005, writer and performer Jenny Allen (The New Yorker, The New York Times) tells her story of the harrowing tailspin she took following her diagnosis, combining biting humor with searing emotion in a witty, bittersweet monologue that limns the personal and family collateral damage a life-threatening illness brings.

Talkback led by:
Alice Spinelli, MSN, ARNP, AOCN, Gyn-Oncology Nurse Practitioner, Health First, Melbourne, FL
Monday, July 12, 2010
7:00 a.m. – 9:00 a.m. Continental Breakfast (Blue Room Pre-Function)
Sponsored by National Ovarian Cancer Coalition
Exhibit Hall Marketplace Open (Blue Room Pre-Function)
8:00 a.m. – 9:15 a.m. Morning Breakout Sessions
Sponsored by Fujirebio Diagnostics, Inc.

Breakout Session #1: Long-Term Survivorship

Repeat of Sunday’s Session
New evidence suggests there are benefits to anti-inflammatory/anti-cancer nutritional planning, exercise, and stress reduction for ovarian cancer survivors. Long-term survivor Annette Leal Mattern put the plan into effect and will report on her success with the program with these results: reduced pain and fatigue, improved energy and quality of life, and the possibility of reducing the rate of recurrence (according to the Arizona Cancer Institute). In this session, Annette will share her experience and materials to help you employ these new survival strategies.

Speaker:
Annette Leal Mattern, President Elect, Ovarian Cancer National Alliance

Breakout Session #2: Imaging Updates
(Calvert Room)
Hear about the appropriate use of imaging technologies with ovarian cancer and an overview of the National Oncologic PET Registry (NOPR) and one advocate’s involvement in it.

Speakers:
Peter Conti, M.D., Ph.D., Professor of Radiology, Pharmacy & Biomedical Engineering, University Southern California, Society for Nuclear Medicine, Los Angeles, CA
Laurel Pracht, Ovarian Cancer Survivor, Patient Advocate, Southwest Oncology Group, Sun City, AZ

Breakout Session #5: Genetics
(Capitol Room)
Learn about ovarian cancer genetics and how to identify families who may be at heredity risk for the disease. Listen to the benefits, risks and limitations of genetic testing for ovarian cancer.

Speakers:
Sue Friedman, DMV, Executive Director, FORCE: Facing Our Risk of Cancer Empowered, Tampa, FL
Sandra Park, Esq., American Civil Liberties Union, New York, NY

Breakout Session #4: Diagnosis Shock (Embassy Room)
Diagnosis shock is an energetic imprint of the trauma of hearing a difficult diagnosis. This session will explore the basic steps of the tapas acupressure - an easy technique used when dealing with trauma.

Speaker:
Jane Beard, Certified Energy Health Practitioner, Silver Spring, MD

Breakout Session #5: Disparities in Healthcare (Governors Room)
Be informed about the statistics that reveal the differences in what various groups of women with the disease experience, including the multi-faceted issue of health disparities and a framework for developing approaches to this issue.

Speaker:
Sheila Thorne, President and CEO, Multicultural Healthcare Marketing Group, LLC, Englewood, NJ
9:30 a.m. – 10:30 a.m. Plenary III: Why it’s Important to be an Advocate (Palladian Room)
Sponsored by Novartis Oncology
Attendees will learn that political advocacy is one of the major ways to work to save women’s lives.

Speakers:
Oliver J. Kim, Senior Legislative Counsel for Health, Senator Stabenow (MI), Washington, DC
Rohini Ravindran, Health Policy Advisor, Senator Michael Bennett (CO), Washington, DC
Nils T. Tillstrom, Senior Legislative Assistant, Congressman David Wu (OR), Washington, DC
10:30 a.m. – 11:30 a.m. Plenary IV: Research Updates Part II: Mello-Abrams Lectureship
Accelerating Ovarian Cancer Research: Recent Victories, Current Opportunities, Future Challenges
(Palladian Room)
This lectureship was established by Jay Schwamm in memory of his late wife Judy Mello and in honor of Judith Abrams, Immediate Past President of the Ovarian Cancer National Alliance. Judy Mello, who lost her life to ovarian cancer and her dear friend, Judith Abrams, accomplished so much for women with this dreadful disease. The Mello-Abrams Lectureship will provide a presentation by a nationally recognized speaker at the Ovarian Cancer National Alliance’s Annual Conference.

Speaker:
Michael Seiden, M.D., Ph.D., President and CEO, Fox Chase Cancer Center, Philadelphia, PA
11:45 a.m. – 12:45 p.m. Networking Lunch (Blue Ballroom)
Sponsored by Precision Therapeutics
Your last chance to network with all the new friends you’ve met throughout the weekend.

Exhibit Hall Marketplace Open (Blue Room Pre-Function)
1:00 p.m. – 2:00 p.m. Power of Words (Palladian Room)
Explore the tie between art and medicine. Two renowned physicians, internist Danielle Ofri M.D. and neuroscientist Michael Salcman M.D., will give us a glimpse of a unique anthology of poetry and medicine. In the words of Dr. Salcman, “beauty may be the antidote to this bear.”

Speakers:
Danielle Ofri, M.D., Ph.D., DLitt (Hon), FACP, Associate Professor of Medicine, New York University, School of Medicine, New York, NY
Michael Salcman, M.D., Neurosurgeon/Poet, Baltimore, MD
2:00 p.m. – 3:00 p.m. Plenary V: Recurrence (Palladian Room)
Sponsored by Morphotek, Inc.
Learn about the medical options available to survivors facing recurrence and review ways you can work with your medical team to make well-informed decisions about your treatment.

Speaker:
Deborah Armstrong, M.D., Associate Professor of Oncology, Gynecology and
Obstetrics, Johns Hopkins Kimmel Cancer Center, Baltimore, MD
3:00 p.m. – 3:30 p.m. Awards Ceremony
Join us as we recognize and celebrate the achievements of three exceptional and inspirational individuals in the ovarian cancer community.

Speaker:
Christine Schmidt, President, Ovarian Cancer National Alliance

Cindy Melancon Spirit of Survivorship Award
Voice for Ovarian Cancer Leadership Award
Rosalind Franklin Excellence in Ovarian Cancer Research Award
3:30 p.m. – 4:00 p.m. Closing Session (Palladian Room)
Speaker:
Karen Orloff Kaplan, MSW, MPH, Sc.D., Chief Executive Officer, Ovarian Cancer National Alliance
Ovarian Cancer Advocacy Day

Monday, July 12, 2010

4:30 p.m. – 6:30 p.m. Advocacy Training (Hampton Room)
For attendees registered for the Advocacy Day on Capitol Hill
SEPARATE REGISTRATION WAS REQUIRED
Discuss the legislative priorities for the ovarian cancer community and practice ways to hold effective meetings on Capitol Hill.

Speakers:
Ilisa Halpern Paul, MPP, Drinker Biddle
Cara Tenenbaum, Esq., Vice President of Policy and External Affairs, Ovarian Cancer National Alliance

Tuesday, July 13, 2010

7:00 a.m. – 8:00 a.m. Travel to Capitol Hill via bus (Meet at Parkview Entrance)
8:00 a.m. – 10:00 a.m. Breakfast on Capitol Hill (Rayburn House Office Building B338-339)
10:00 a.m. – 3:00 p.m. Congressional Visits
Participants will attend scheduled appointments with their elected officials to convey the importance of ovarian cancer programs in Congress and garner support for them.
4:00 p.m. – 5:00 p.m. Shout Back: Advocacy Day Debriefing (Congressional Room)
Gives Advocacy Day participants the opportunity to talk about what worked and what did
not; and how Congressional staff reacted to the information and requests.

Speaker:
Cara Tenenbaum, Esq., Vice President of Policy and External Affairs, Ovarian Cancer National Alliance